{"id":14482,"date":"2019-05-23T12:26:43","date_gmt":"2019-05-23T09:26:43","guid":{"rendered":"http:\/\/www.evildressmaker.com\/?p=14482"},"modified":"2019-05-23T12:26:51","modified_gmt":"2019-05-23T09:26:51","slug":"elamani-puolikuntoisena-my-sickly-life","status":"publish","type":"post","link":"http:\/\/www.evildressmaker.com\/?p=14482","title":{"rendered":"El\u00e4m\u00e4ni puolikuntoisena \/ My sickly life"},"content":{"rendered":"\n<p>En juurikaan kirjoittele blogiin mit\u00e4\u00e4n terveydentilastani tai muista hirve\u00e4n henkil\u00f6kohtaisista asioista. En koe, ett\u00e4 t\u00e4m\u00e4 varsinaisesti on paikka ruotia el\u00e4m\u00e4\u00e4ni kovin syv\u00e4lt\u00e4. Mutta t\u00e4n\u00e4\u00e4n ajattelin poikkeuksellisesti tehd\u00e4 niin. J\u00e4ljemp\u00e4n\u00e4 kerron miksi. <\/p>\n\n\n\n<p>Blogissakin on osaltaan n\u00e4kynyt ett\u00e4 en ole voinut hirve\u00e4n hyvin viimeisen vuoden aikana. Postaustahti on hidastunut ja postauksiin k\u00e4ytt\u00e4m\u00e4ni aika v\u00e4hentynyt radikaalisti. En yksinkertaisesti ole jaksanut. Entinen rehtorini peruskouluajoilta <strong>(terveisi\u00e4 Sakarille sinne pilven reunalle)<\/strong> olisi ehk\u00e4 kutsunut t\u00e4t\u00e4 tilaa nimell\u00e4 <em>laiskimus madonius<\/em>. Ja n\u00e4in itsekin vahvasti luulin ensin. Olenhan aina ollut melkoisen perusterve. Normaalia kausinuhaa, lapsuuden vatsatautia ja vesirokkoa, sek\u00e4 aikuisena ilmennytt\u00e4 laktoosi-intoleranssia ja migreeni\u00e4 lukuunottamatta olen sairastellut hyvin v\u00e4h\u00e4n el\u00e4m\u00e4ni aikana. Joo, kroonistuneesta migreenist\u00e4 huolimatta pid\u00e4n itse\u00e4ni ihan terveen\u00e4 yksil\u00f6n\u00e4.<\/p>\n\n\n\n<p>Viime syksyn\u00e4 hakeuduin kuitenkin l\u00e4\u00e4k\u00e4riin kun ep\u00e4m\u00e4\u00e4r\u00e4isi\u00e4 oireita alkoi kasaantua. Talven ja kev\u00e4\u00e4n aikana tehtyjen tutkimusten perusteella vyyhti alkaa pikkuhiljaa aueta. Viel\u00e4 ei olla ihan selvill\u00e4 vesill\u00e4, mutta nyt vahvasti n\u00e4ytt\u00e4\u00e4 silt\u00e4 ett\u00e4 syy<strong>(t)<\/strong> pitk\u00e4\u00e4n jatkuneeseen puolikuntoiseen oloon on l\u00f6ytynyt. Verikokeiden perusteella l\u00f6ytyiv\u00e4t alhainen varastorauta ja kilpirauhasen vajaatoiminta. Monet l\u00e4\u00e4k\u00e4rit ja terveydenhoitohenkil\u00f6kunta pit\u00e4v\u00e4t ferritiini\u00e4 muoti-ilmi\u00f6n\u00e4. Alhaista varastorautaa jopa kielt\u00e4ydyt\u00e4\u00e4n hoitamasta jossain paikoin. N\u00e4ytt\u00e4\u00e4 olevan hiukan kiistanalaista mik\u00e4 katsotaan liian alhaiseksi varastoraudan m\u00e4\u00e4r\u00e4ksi. Aiheesta on <a rel=\"noreferrer noopener\" aria-label=\"julkaistu Ylen Akutissa (opens in a new tab)\" href=\"https:\/\/yle.fi\/aihe\/artikkeli\/2019\/05\/23\/ferritiinivillitys-jakaa-asiantuntijoiden-mielipiteet-monna-pursiainen-38-luuli?fbclid=IwAR3SESqzextr76QskoK6zEc110_zJj7D0UVc-Y0jnc1LhbCzslff3HrXlZM\" target=\"_blank\">julkaistu Ylen Akutissa<\/a> juttu josta k\u00e4y hyvin selville l\u00e4\u00e4k\u00e4reiden kahtiajakoinen suhtautuminen. Omalle kohdalleni osui onneksi l\u00e4\u00e4k\u00e4ri joka uskoi oireisiini, niin ep\u00e4m\u00e4\u00e4r\u00e4isi\u00e4 kuin ne ovatkin. H\u00e4n suostui kirjoittamaan l\u00e4hetteen ferritiinin mittaukseen vaikka hemoglobiinini olikin oikein hyv\u00e4, ja tulosten perusteella suositteli rautakuuria.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"653\" height=\"1024\" src=\"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring1.jpg?resize=653%2C1024\" alt=\"\" class=\"wp-image-14486\" srcset=\"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring1.jpg?resize=653%2C1024 653w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring1.jpg?resize=127%2C200 127w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring1.jpg?resize=191%2C300 191w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring1.jpg?resize=768%2C1205 768w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring1.jpg?w=800 800w\" sizes=\"auto, (max-width: 653px) 100vw, 653px\" \/><\/figure>\n\n\n\n<p>Suomalaista terveydenhuoltoa on pidetty maailman huippuna, mutta nykyisin se tuntuu usein olevan vain potilaiden kyykytyspaikka kun l\u00e4\u00e4k\u00e4rit kielt\u00e4ytyv\u00e4t hoitamasta tiettyj\u00e4 sairauksia. Joko omaa erinomaisuuttaan tai Valviran m\u00e4\u00e4r\u00e4yksest\u00e4. Siksi on minusta t\u00e4rke\u00e4\u00e4 ett\u00e4 potilaat vaativat hoitoa, joka heille lain mukaan kuuluu. Vaikka en tee t\u00e4t\u00e4 kovin mielell\u00e4ni niin listaan t\u00e4h\u00e4n omat oireeni. Ne kaikki voivat olla alhaisen ferritiinin aiheuttamia.  Osa niist\u00e4 toki kuuluu my\u00f6skin kilpirauhasen vajaatoiminnan oireisiin tai johonkin muuhunkin sairauteen, mutta my\u00f6skin kilpirauhasen vajaatoiminta voi ilmeisesti olla alhaisen varastoraudan aiheuttamaa. Jokainen oire yksin\u00e4\u00e4n on melko v\u00e4h\u00e4p\u00e4t\u00f6inen eik\u00e4 kovin vakava, siit\u00e4 syyst\u00e4 itsell\u00e4nikin kesti aikansa ennenkuin hakeuduin l\u00e4\u00e4k\u00e4riin. Luulin tulevani hulluksi, kun oireet olivat toisaalta niin v\u00e4h\u00e4p\u00e4t\u00f6isi\u00e4 mutta silti tunsin itseni kuukausi kuukaudelta sairaammaksi.  Kun oireita alkaa ker\u00e4\u00e4nty\u00e4 on syyt\u00e4 selvitt\u00e4\u00e4 mist\u00e4 ne johtuvat. Jaan t\u00e4m\u00e4n kaiken siksi ett\u00e4 ehk\u00e4 joku muukin minun tilanteessani oleva saisi uskallusta hakeutua ajoissa l\u00e4\u00e4k\u00e4riin.<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\"><p><strong>Oireet:<\/strong><br>&#8211; jatkuva v\u00e4symys, varsinkin iltap\u00e4iv\u00e4ll\u00e4<br>&#8211; palelu<br>&#8211; hiustenl\u00e4ht\u00f6<br>&#8211; ihon jatkuva kutina kauttaaltaan, johon allergial\u00e4\u00e4ke tuo vain v\u00e4liaikaisen helpotuksen<br>&#8211; naaman ja kaulan n\u00e4ppyl\u00f6ityminen<br>&#8211; p\u00e4\u00e4nahan runsas kutina, hilseily ja rasvoittuminen<\/p><p>&#8211; huimaus<br>&#8211; muistih\u00e4iri\u00f6t, muistin huonontuminen, aivosumu<br>&#8211; nivelj\u00e4ykkyys ja kipuilu<br>&#8211; rasituksesta palautuminen hidasta<br>&#8211; n\u00e4r\u00e4stys, etenkin urheillessa, my\u00f6hemmin l\u00e4hes p\u00e4ivitt\u00e4in<br>&#8211; makeanhimo, painonnousu<\/p><p>&#8211; kuorsaus<\/p><p>&#8211; leukaj\u00e4ykkyys aamuisin<\/p><\/blockquote>\n\n\n\n<p>Korostan ett\u00e4 n\u00e4m\u00e4 ovat minun oireitani ja osan taustalla voi olla muitakin syit\u00e4 kuin alhainen ferritiini. Tilanne on viel\u00e4 ns. p\u00e4\u00e4ll\u00e4 ja asiaa tutkitaan. Listaa lukiessa on kuitenkin helppo huomata, ett\u00e4 kukin oire yksin\u00e4\u00e4n ei ole kovin erikoinen tai edes sen suuremmin toimenpiteit\u00e4 aiheuttava. Suurin syy miksi alunperin hakeuduin l\u00e4\u00e4k\u00e4riin oli tuo nivelten j\u00e4ykistyminen, v\u00e4symys, jatkuva ihon kutina ja se ett\u00e4 aiemmin n\u00e4it\u00e4 oireita ei ole ollut. Ymm\u00e4rr\u00e4n ett\u00e4 kroppa alkaa vanhemmiten pist\u00e4\u00e4 vastaan, mutta mielest\u00e4ni alle 50-vuotiaana ei pit\u00e4isi olo tuntua viel\u00e4 ihan n\u00e4in raihnaiselta. Jos istun tv:n \u00e4\u00e4ress\u00e4 puolisen tuntia, kest\u00e4\u00e4 hetken ett\u00e4 saan nivelet taas toimimaan kivutta. Aamulla s\u00e4ngyst\u00e4 noustessa joudun kivun takia liikuttamaan raajoja ensin todella hitaasti. L\u00e4\u00e4k\u00e4ri oli sit\u00e4 mielt\u00e4 ett\u00e4 se on normaalia elimist\u00f6n vanhenemista. H\u00e4n tokikaan ei voi tiet\u00e4\u00e4 mille kropassani tuntuu. Itse en suostu hyv\u00e4ksym\u00e4\u00e4n sit\u00e4 ett\u00e4 vanhetessa nivelten kuuluu olla j\u00e4yk\u00e4t tai sattua.  Nivelreuma on kuitenkin suljettu pois laskuista. <\/p>\n\n\n\n<p>Oma hoitoni on vasta alkumetreill\u00e4, mutta olen toiveikas ett\u00e4 t\u00e4st\u00e4 viel\u00e4 p\u00e4\u00e4st\u00e4\u00e4n uuteen nousuun kun rautavarastot alkavat t\u00e4ytty\u00e4. Migreenitkin saattavat v\u00e4henty\u00e4 sen my\u00f6t\u00e4 ja se jos mik\u00e4 olisi aivan pop! Ja piristymisen my\u00f6t\u00e4 uskon bloginkin vertyv\u00e4n t\u00e4st\u00e4 ahkerampaan postaustahtiin. <\/p>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"214\" height=\"100\" src=\"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2013\/11\/inenglish.gif?resize=214%2C100\" alt=\"\" class=\"wp-image-7004\"\/><\/figure><\/div>\n\n\n\n<p>I don&#8217;t really write much about my health or other very private and personal issues here. I don&#8217;t feel that this blog is place for it. However today I am exceptionally doing so. I will tell you why , keep on reading.<\/p>\n\n\n\n<p>You might have noticed that I haven&#8217;t been posting so much during the last year.  I have spent much less time and effort doing posts. I just haven&#8217;d had the energy. My old school principal <strong>(my greetings to Sakari somewhere up in the clouds)<\/strong> would have probably described this as something called <em>laiskimus madonius<\/em>. <strong>(That might translate like <\/strong><em><strong>lazious wormicus<\/strong><\/em><strong>, comical &#8220;latin&#8221; term for laziness. )<\/strong> That&#8217;s what I was thinking myself at first. I have always been quite healthy. Just some normal childhood illnesses like chicken pox, in my adulthood years just common cold, lactose intolerance and migrain. I haven&#8217;t really been ill much during my whole life. Yeah, despite of chronical migrain, I consider myself pretty healthy individual. <\/p>\n\n\n\n<p>Last Autumn I decided to go to the doctors, due to loads of odd symptoms. During the Winter and Spring, some tests have been done. I still need long term treatments, but the reason<strong>(s)<\/strong> for my poorly condition are finally revealed. Based on blood tests it is clear that my ferritin is low and I also have hypothyroidism. Many Finnish doctors and medical staff think testing ferritin is just some fashionable thing. In some places they even refuse to treat low ferritin. It also seems a bit of an argument among medical doctors, what is considered too low amount. In my case, I thankfully got a doctor who believed my symptoms as insignificant and odd they are. He sent me to ferritin test even though my hemoglobin was very good. And based on the results, he recommended iron supplement.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"698\" height=\"1024\" src=\"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring2.jpg?resize=698%2C1024\" alt=\"\" class=\"wp-image-14487\" srcset=\"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring2.jpg?resize=698%2C1024 698w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring2.jpg?resize=136%2C200 136w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring2.jpg?resize=204%2C300 204w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring2.jpg?resize=768%2C1127 768w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring2.jpg?w=800 800w\" sizes=\"auto, (max-width: 698px) 100vw, 698px\" \/><\/figure>\n\n\n\n<p>Finnish healtcare is considered top of the world, but these days it often seems like patients are just inconvenience to doctors when they refuse to treat some illnesses. Either they are too self-assured or Valvira <strong>(the highest authority in Finnish healthcare)<\/strong> forbids them to. That&#8217;s why I think it&#8217;s important that patients demand the healthcare, that belongs to them according to the law. Even though I am not very comfortable by doing this, I am listing here my symptoms. They all can be caused by low ferritin. Some of them are also symptoms of hypothyroidism, or maybe even other things. However hypothyroidism can also be symptom of low ferritin. Every symptom on their own, is not very severe, that&#8217;s why it took so long before I went to see the doctor. I thought I was becoming mad. Symptoms were quite insignificant, but still I felt I&#8217;m becoming more and more sick month by month. When symptoms start piling up, it&#8217;s worth a check. I share all this, so that perhaps someone  in my position will find the courage to seek the help of medical doctor. <\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\"><p><strong>My symptoms:<\/strong><br>&#8211; constant tiredness, especially afternoon<br>&#8211; feeling cold all the time<br>&#8211; loss of hair<br>&#8211; constant itchyness all over, allergy tablets only give temporary help<br>&#8211; spots on face and neck<br>&#8211; itchyness, flakyness and grease on scalp<\/p><p>&#8211; dizzyness<br>&#8211; memory problems, some sort of &#8220;brain fog&#8221;<br>&#8211; stiffness and pain on joints <br>&#8211; slow recovery from sports<br>&#8211; heartburn during exercise, but later almost daily<br>&#8211; sweet tooth, weightgain<\/p><p>&#8211; snoring<\/p><p>&#8211; stiff jaw in the morning<\/p><\/blockquote>\n\n\n\n<p>I highly emphasize that these are just my own symptoms. Some of them might be cause something else than low ferritin. In my case, it&#8217;s still under investigation. However when reading the list, it&#8217;s easy to notice that none of the symptoms are not very special or on their own even requires much attention. The biggest reasons why I finally went to the doctor is the constant itching of my whole body, stiff joints, tiredness and the fact that I didn&#8217;t have any of these symptoms before. I do understand that when you get older, the body gets aches and so on. But I&#8217;m not even 50 yet. If I sit by the tv for 30 mins and then get up, it takes a while before my joints start working without pain. In the morning when I get up, I have to start moving my limbs very very slowly until the stop hurting.  Doctor seems to think it&#8217;s normal when body gets older. I still refuse to believe that this stiffness and aching in my joints is what I&#8217;m supposed to feel when getting old. Arthritis has been excluded though.<\/p>\n\n\n\n<p>My treatment is now only in the beginning, but I am hopefull I will eventually feel better when my ferritin levels are getting better.  Even my migrains might ease up, that that would be super! And I believe that my blog will also see a new rise when I start feeling more energetic again.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"664\" height=\"1024\" src=\"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring3.jpg?resize=664%2C1024\" alt=\"\" class=\"wp-image-14488\" srcset=\"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring3.jpg?resize=664%2C1024 664w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring3.jpg?resize=130%2C200 130w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring3.jpg?resize=194%2C300 194w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring3.jpg?resize=768%2C1185 768w, https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring3.jpg?w=800 800w\" sizes=\"auto, (max-width: 664px) 100vw, 664px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>En juurikaan kirjoittele blogiin mit\u00e4\u00e4n terveydentilastani tai muista hirve\u00e4n henkil\u00f6kohtaisista asioista. En koe, ett\u00e4 t\u00e4m\u00e4 varsinaisesti on paikka ruotia el\u00e4m\u00e4\u00e4ni kovin syv\u00e4lt\u00e4. Mutta t\u00e4n\u00e4\u00e4n ajattelin poikkeuksellisesti tehd\u00e4 niin. J\u00e4ljemp\u00e4n\u00e4 kerron miksi. Blogissakin on osaltaan n\u00e4kynyt ett\u00e4 en ole voinut hirve\u00e4n hyvin viimeisen vuoden aikana. Postaustahti on hidastunut ja postauksiin k\u00e4ytt\u00e4m\u00e4ni aika v\u00e4hentynyt radikaalisti. En yksinkertaisesti&#8230; <\/p>\n<div class=\"link-more\"><a href=\"http:\/\/www.evildressmaker.com\/?p=14482\">Read More<\/a><\/div>\n","protected":false},"author":1,"featured_media":14486,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"My sickly life aka why my blog is so quiet these days","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[20,12],"tags":[91,80],"class_list":{"0":"post-14482","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","6":"hentry","7":"category-kitinaa","8":"category-munelama","9":"tag-my-life","10":"tag-whine","12":"fallback-thumbnail"},"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.evildressmaker.com\/wp-content\/uploads\/2019\/05\/spring1.jpg?fit=800%2C1255","jetpack_shortlink":"https:\/\/wp.me\/p2H8as-3LA","jetpack_sharing_enabled":true,"jetpack_likes_enabled":true,"_links":{"self":[{"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=\/wp\/v2\/posts\/14482","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=14482"}],"version-history":[{"count":5,"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=\/wp\/v2\/posts\/14482\/revisions"}],"predecessor-version":[{"id":14490,"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=\/wp\/v2\/posts\/14482\/revisions\/14490"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=\/wp\/v2\/media\/14486"}],"wp:attachment":[{"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=14482"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=14482"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.evildressmaker.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=14482"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}